Hanging On

Lupus, Peripheral Neuropathy, Sjogren’s, chronic headaches and now, debilitating fatigue. I am not here to whine and complain because I am blessed beyond my expectations in so many other ways. I am here to reach out to anyone who may be suffering along with me and to get my fear out of my head and writing helps me do that.

I have been trying to exercise, to get myself healthier so that I didn’t feel so tired all the time, when a few months ago, I started having extreme bouts of fatigue on a daily basis. Every single day it would hit me anywhere from 11:00 am to 12:00 pm. It wasn’t simply a feeling of fatigue; I could not move my arms, my legs were so weak I had to lay down and my speech was affected as well. My husband could see it coming he told me. My eyes, my speech and it really worried him.

I have never experienced anything like this and I have to be honest, it scares me a lot. I contacted my doctor and she is running blood tests so I am hoping to hear soon what is going on. I don’t believe it’s going to be some new disease; however, if it is an offshoot of Lupus, am I going to be dealing with this as an addition to the pain, swelling, etc. I have now? How do you prepare for a life of extreme fatigue like I am experiencing?

I have no idea what is going to happen or how I will have to handle it; but, I do know that I will do whatever it takes. Although I am so tired of dealing with my pain every day as it is, I know it’s better than the alternative. I may be jumping the gun; but, I am praying that my blood test results will show something that is manageable in one way or another. I am grateful for having a platform (small though it may be) to share my thoughts, feelings and opinions. Thank you for allowing me to share with you.

Peace out.

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